Funding awarded from Marie Curie and the Motor Neurone Disease Association (MNDA)

We are delighted to announce that our team, together with our collaborators Dr John Ealing (MND Care Centre, Salford Royal NHS Foundation Trust), Professor Carolyn Young (Walton Centre for Neurology & Neurosurgery NHS Foundation Trust, Liverpool) Dr Chris McDermott (Sheffield Institute for Translational Neuroscience) and Professor Chris Gibbons (University of Cambridge), have recently been awarded funding from Marie Curie and the Motor Neurone Disease Association (MNDA) which will reshape the process of the Carer Support Needs Assessment Tool (CSNAT) intervention for family carers of people with MND.

We know that family carers provide vital support for people with MND, but caregiving can be very physically and mentally demanding. It is therefore crucial to ensure practitioners/clinicians can give support to carers that is timely and fits their individual needs.

The aim of this project is to adapt the CSNAT intervention to fit the demands of MND caregiving, changes over time and practitioners involved, and reshape it to give carers themselves control over its use to ensure more joined-up assessment and support over time. In current practice carer assessment and support is typically informal, selective and driven by practitioners’ assumptions about carers’ needs. By facilitating more timely, targeted support, identified by carers themselves, the intervention will also benefit patients by better equipping carers to care.

For further information please contact us

Study Title: Enabling tailored and coordinated support for family carers of people with MND through adaptation of a Carer Support Needs Assessment Tool (CSNAT) intervention

Project Team: Principal Investigators: Professor Gunn Grande1, Dr Gail Ewing2

Co-investigators: Professor Chris Gibbons2, Dr Janet Diffin3, Dr Christine Rowland1, Dr John Ealing 1, 4, Professor Carolyn Young5, Dr Chris McDermott6

  1. The University of Manchester
  2. University of Cambridge
  3. Queen’s University Belfast
  4. MND Care Centre, Salford Royal NHS Foundation Trust
  5. Walton Centre for Neurology & Neurosurgery NHS Foundation Trust, Liverpool
  6. Sheffield Institute for Translational Neuroscience
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